VHL Syndrome Surveillance Checklist

Surveillance Checklist0 / 5

VHL surveillance guidelines aim to detect tumors early when they are most treatable. Genetic testing for RET/VHL should be offered to all family members at risk.

Guidelines & Evidence

Verified

Last Review: 2026

When to Use

Who Needs This?

Patients with a molecularly confirmed Von Hippel-Lindau (VHL) syndrome.

First-degree relatives of known VHL patients awaiting genetic testing results.

Evaluating clusters of VHL-associated tumors (e.g., bilateral RCC + cerebellar hemangioblastoma).

Last Comprehensive Review: 2026

Recent Journal Updates

JAMAJul 21, 2026

PCOS Is Now Called PMOS

Clinical Context

We think this might be relevant to the clinical guidance for VHL Syndrome Surveillance Checklist.

British J Clinical PharmacologyJul 20, 2026

From under‐reporting to over‐capture: Prioritizing preventable harm in ICD‐10 ADR surveillance

Clinical Context

We think this might be relevant to the clinical guidance for VHL Syndrome Surveillance Checklist.

WHO NewsJul 15, 2026

Global childhood immunization coverage inches forward despite conflict and hesitancy – UNICEF, WHO

Clinical Context

We think this might be relevant to the clinical guidance for VHL Syndrome Surveillance Checklist.

VHL Syndrome Surveillance Checklist

When to Use

Who Needs This?

How it Works

Annual High-Priority Screens

Imaging Intervals

Clinical Pearls

The "3.0 cm" Rule in RCC

Audiology Note

The Evidence

Primary Source

The VHL Handbook.

Recent Journal Updates

VHL Syndrome Surveillance Checklist

When to Use

Who Needs This?

How it Works

Annual High-Priority Screens

Imaging Intervals

Clinical Pearls

The "3.0 cm" Rule in RCC

Audiology Note

The Evidence

Primary Source

The VHL Handbook.

Recent Journal Updates